|Bob and Red Kitka|
How very lucky we are to have insurance that covers the very, very expensive treatments for psoriasis. Many people, we learned through online support groups, don't have access to these drugs. Enbrel, Humira, and similar drugs are many thousands of dollars but usually very effective.
Treatments don't work!
Oddly, 'spensive as they were, they didn't really having an effect on Bob's condition. The body rash never really improved much, despite these state-of-the-art meds and topicals recommended on support groups. This winter it was particularly bad, and my husband grappled with constant itching, pain 'like a bad sunburn,' chills, fingertip infections, to say nothing of going through life with "dots" all over. In late January, his hair started to fall out in patches. The dermatologist did another skin biopsy, which was inconclusive but showed a particular pattern suggestive of another kind of problem. Hoping for something more definitive, he did four more biopsies.
Not psoriasis after all
This time the results came back with a conclusive diagnosis, from two different pathologists: cutaneous T-cell lymphoma. In one sense it is bad news, because the 'L' word is a scary word. In many other ways it is good news. Most importantly, the prognosis is good, but also:
- It is a chance for symptom relief -- skin issues, especially full-body skin issues, are a real blow to quality of life.
- The initial treatment is non-invasive,with few side effects.
- It can go into remission -- that's the goal.