tag:blogger.com,1999:blog-6317822193674196694.post7192466527576467858..comments2024-03-01T06:49:59.106-05:00Comments on Behind the Bit: Harv update and PSA on CTCLStacey Kimmel-Smithhttp://www.blogger.com/profile/08498926535389535263noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-6317822193674196694.post-87428451852233373642016-02-03T06:20:11.251-05:002016-02-03T06:20:11.251-05:00You sound very knowledgeable about CTCL. Thank you...You sound very knowledgeable about CTCL. Thank you for that! I wish you had said a little more about what Bob is doing to manage his CTCL. I know you've researched CTCL thoroughly, yet I'd still like to ask if you've considered or tried PUVA (Psoralen + Ultraviolet A)? A word of caution: PUVA itself can cause pruritis in the hands of overzealous dermatologists. So, I would ask for a Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-84994431495439324292013-03-26T15:10:24.383-04:002013-03-26T15:10:24.383-04:00My father-in-law had T cell lymphoma and it took q...My father-in-law had T cell lymphoma and it took quite a while to get a correct diagnosis. He was fortunate in being in DC and having access to NIH and the Navy Med, where they were sophisticated enough to recognize it. I am rooting for you and your husband and it is kind of you to warn people how hard to diagnose this cancer is. I'll be thinking of you and hoping for the best. Lisa YoungAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-68139001874133831462013-03-25T19:58:56.260-04:002013-03-25T19:58:56.260-04:00I am impressed with your quality research and empa...I am impressed with your quality research and empathy with people who have this and other similar conditions. It's so hard to imagine what these conditions are like when you don't have them. I suppose we all know people who have some kind of problem that plagues them 24/7. I hope the proper diagnosis will result in successful treatment. Mary Louhttps://www.blogger.com/profile/09369843518823655377noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-36772423062763583222013-03-25T15:09:38.443-04:002013-03-25T15:09:38.443-04:00I think Harv looks nicely filled-out and quite hap...I think Harv looks nicely filled-out and quite happy. :-)<br /><br />My new rheumatologist asked me several times if I've ever had psoriasis (no, never). Apparently rheumatoid arthritis is related to that, too. All of this auto-immune stuff is big-time scary, especially because these diseases seem to be on the upswing. What are we doing to ourselves? My illness came out of nowhere as well. RiderWriterhttps://www.blogger.com/profile/05679157278313699794noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-54853839103497296632013-03-25T12:58:08.599-04:002013-03-25T12:58:08.599-04:00Thank you for the information, you never know when...Thank you for the information, you never know when or who it might help. I hope Bob is able to find some relief now that he has a proper diagnosis. Glad to hear Harv is looking better.RuckusButthttps://www.blogger.com/profile/14760056031442317243noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-28775819537608266382013-03-25T12:47:25.327-04:002013-03-25T12:47:25.327-04:00Not only are skin conditions debilitating and the ...Not only are skin conditions debilitating and the drugs to treat many of them expensive, they come with horrific side effects. Prayers to Bob.TBDancerhttps://www.blogger.com/profile/03889066602819359591noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-133473896437502422013-03-25T12:29:20.439-04:002013-03-25T12:29:20.439-04:00Wonder if CTCL and psoriasis have any connection t...Wonder if CTCL and psoriasis have any connection to each other. I noted on one website that there may be a virus involved. <br /><br />Either way, it is far better to have a definitive diagnosis rather than being in the dark about what's going on. Once again, there seem to be some pretty effective treatments. Apparently they need to tailor each one to the individual patient. I wish you and Jeanhttps://www.blogger.com/profile/10029423500476995817noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-11999012386156106552013-03-25T11:06:48.640-04:002013-03-25T11:06:48.640-04:00My sister has psoriasis - it *is* awful I will pa...My sister has psoriasis - it *is* awful I will pass this information on to her.Anonymoushttps://www.blogger.com/profile/08786557705554933064noreply@blogger.com