tag:blogger.com,1999:blog-6317822193674196694.post61079053348689948..comments2024-03-01T06:49:59.106-05:00Comments on Behind the Bit: Bob update: A new journeyStacey Kimmel-Smithhttp://www.blogger.com/profile/08498926535389535263noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-6317822193674196694.post-7059427412350789472013-03-19T15:21:17.680-04:002013-03-19T15:21:17.680-04:00Oh Stacey ... I am so sorry you and Bob are going ...Oh Stacey ... I am so sorry you and Bob are going through this. My heart aches for you. I think it should be an absolute requisite that anybody working in the healthcare industry have an ebullient personality and an impeccable bedside manner. There is NO excuse whatsoever for someone to be dour or curt in regards to one's sincere questions (especially in regards to a potentially SportPoneezhttps://www.blogger.com/profile/01528116665447013734noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-6099131273200024192013-03-18T23:02:49.142-04:002013-03-18T23:02:49.142-04:00It sucks to have to police your own medical care p...It sucks to have to police your own medical care providers in such a way, especially when you are already physically not well. At least this incompetence took place towards the beginning of Bob's journey through the morass that is our medical system. I'm sorry you learned the hard way that you must be your own advocate. My thougths & well wishes go out to you two.<br /><br />K. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-27333402021552878332013-03-18T21:35:58.076-04:002013-03-18T21:35:58.076-04:00Best wishes to you both. What a nightmare.Best wishes to you both. What a nightmare.SprinklerBandithttps://www.blogger.com/profile/02948487857418394022noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-65864445003121757672013-03-18T11:52:00.998-04:002013-03-18T11:52:00.998-04:00Oooh, I am just Gritting. My. Teeth. How DARE that...Oooh, I am just Gritting. My. Teeth. How DARE that woman dismiss Bob like that??!? Just goes to show you that a) we have GOT to be our own best advocates in every single aspect of health care and b) it helps when someone else has your back. (As in, if you've been there I bet that you-know-what would have gotten an earful) The older I get the more I realize this is true! <br /><br />I myself RiderWriterhttps://www.blogger.com/profile/05679157278313699794noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-7508377898351909312013-03-18T10:46:33.784-04:002013-03-18T10:46:33.784-04:00Will be sending prayers your way for the best poss...Will be sending prayers your way for the best possible outcome. I'm so sorry this is happening. <br />The good news is Bob has you, and you're a horse person. Horse people are generally more comfortable pushing and questioning about medical issues, I think. (The norm being we're used to patients who are unable to advocate for themselves.) <br />We just went through a year of "Janehttp://www.theliteraryhorse.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-49136191824100879552013-03-18T10:18:10.621-04:002013-03-18T10:18:10.621-04:00Hi All, I'm an idiot! I accidentally deleted c...Hi All, I'm an idiot! I accidentally deleted comments unintentionally -- have never done that before and there appears to be no "reverse" -- So sorry, please feel free to resubmit. I did read everyone's comments and I appreciate the thoughts and advice. Geez.Stacey Kimmel-Smithhttps://www.blogger.com/profile/08498926535389535263noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-80009449362590261752013-03-18T09:56:42.521-04:002013-03-18T09:56:42.521-04:00Working in thoracic oncology, I know from experien...Working in thoracic oncology, I know from experience how important it is for patients to be their own advocates. If I were you, I would get an appointment at Sloan Kettering in addition. You are going to want another opinion besides UPenn. There may be different options for clinical trials at each of the institutions - and you WANT to be on a clinical trial if at all possible (they offer the mostAnonymoushttps://www.blogger.com/profile/01262089067550446846noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-32527932156168861382013-03-18T07:50:02.473-04:002013-03-18T07:50:02.473-04:00Sending good wishes to you both... I hope you can ...Sending good wishes to you both... I hope you can get some answers for Bob. Unfortunately when dealing with serious medical issues, it seems that the patient and/or his/her family really needs to be on top of things. Results get lost/misinterpreted or tests not done...be vigilant and keep some documentation so you can remember what was done when and by whom. I've had to do that in the pastLaurahttps://www.blogger.com/profile/01736592362765508427noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-60195262762075491432013-03-17T22:20:23.508-04:002013-03-17T22:20:23.508-04:00Every time I hear one of these stories from educat...Every time I hear one of these stories from educated professionals, I wonder how many health solutions go amiss for less fortunate populations. <br />Persistently ask questions! Go with your gut! Be strong!V. Violahttps://www.blogger.com/profile/11207894774400070699noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-55707006714610398342013-03-17T19:21:35.122-04:002013-03-17T19:21:35.122-04:00This comment has been removed by a blog administrator.Jeanhttps://www.blogger.com/profile/10029423500476995817noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-13168656542684642092013-03-17T17:25:53.357-04:002013-03-17T17:25:53.357-04:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-852346198356126222013-03-17T16:55:39.544-04:002013-03-17T16:55:39.544-04:00This comment has been removed by a blog administrator.Rachel Saundershttps://www.blogger.com/profile/16035813195253959237noreply@blogger.comtag:blogger.com,1999:blog-6317822193674196694.post-26990823455775410142013-03-17T13:45:38.847-04:002013-03-17T13:45:38.847-04:00This comment has been removed by a blog administrator.TeresaAhttps://www.blogger.com/profile/05311118900077951863noreply@blogger.com