Saturday, December 14, 2013

Bob update: Future so bright

Not exactly Ray-Bans, but they'll keep his eyes safe
Bob has his Targretin, and the drug should be back in supply by the end of his 28-day cycle. Yeah!

 Bob's cancer is "75% pushed back" (says one doctor), or "on simmer" (says another). Bob is trying another form of radiation/light therapy, PUVA. He has to take a drug that reduces the body's ability to deflect radiation (my layman understanding) and then he gets zapped with full body radiation in a phone booth. Then, for 24 hours, he has to wear sunglasses and slather on SPF 50 lotion. And do it again two days later.

He drives at night and they tell him he must still wear glasses at night. Therefore, he can't drive to work and is taking two FMLA days a week. So far his employers have been supportive.

Personally, I'm not entirely on board with this new treatment--it's disruptive and uncomfortable. The UPenn doctor said that his current state of improvement is considered a success. But Bob wants to be free of symptoms, and you can't blame him for that.


2 comments:

  1. Medicine has made some amazing progress over the last few years. Here's hoping that this new treatment will help Bob more than enough to make up for the inconvenience and discomfort. So far, he looks like he's smiling just fine!

    ReplyDelete
  2. I wear my sunglasses at night
    So I can, So I can
    Watch you weave then breathe your story lines
    And I wear my sunglasses at night
    So I can, So I can
    Keep track of the visions in my eyes

    While, she's deceiving me,
    It cuts my security (has)
    she got control of me
    I turn to her and say

    Don't switch the blade on the guy in shades; oh no
    Don't masquerade with the guy in shades;
    (oh no) (I can't believe it)
    You got it made with the guy in shades; oh no

    I wear my sunglasses at night
    So I can, So I can
    Forget my name while you collect your claim
    And I wear my sunglasses at night
    So I can, So I can
    See the light that's right before my eyes

    While she's deceiving me,
    she cuts my security (has)
    She got control of me
    I turn to her and say

    Don't switch the blade on the guy in shades (oh no)
    Don't masquerade with the guy in shades
    (oh no) (I can't believe it)
    (cuz) You got it made with the guy in shades (oh no)

    While she's deceiving me,
    she cuts my security (has)
    She got control of me
    I turn to her and say

    Don't switch the blade on the guy in shades (oh no)
    Don't masquerade with the guy in shades
    (oh no) (I can't believe it)
    don't be afraid of the guy in shades
    (oh No) (It can't escape you)
    (cus) You got it made with the guy in shades (oh no)

    I said
    I wear my sunglasses at night
    I wear my sunglasses at night
    I wear my sunglasses at night

    I say to ya now
    I wear my sunglasses at night
    I wear my sunglasses at night
    I wear my sunglasses at night

    I cry to you
    I wear my sunglasses at night
    I wear my sunglasses at night

    ReplyDelete

Hi Guys, Your comments are valued and appreciated -- until recently I never rejected a post. Please note that I reserve the right to reject an anonymous post.